New: Neurologist comments on the treatment of SSPE with G Therapy.
About 10 patients of SSPE have shown perceptible improvements in cognitive and motor functions with G Therapy.
Improvements are also seen in their EEG. Several international observers have reviewed this research - including Neurologists from India and Germany, OT board member from USA and parents from all over the world.
Following are a few case studies and testimonials before and after G Therapy in the treatment of SSPE.
Case 1 (from Germany):
http://www.aktion-max.de/news.html
Case 2 (Email of parent of SSPE patient from Turkey):
Dear Mr.Oswall,
I am a Turkish mother fighting against SSPE (Subakut Sklerozan Panensefalit ). My son’s name is Ufuk TANYILDIZI. He got sick at the age of 10 and has been living tied to bed for four years. I have got the your information via Nilgun Uluvar. We have been witnessing that our child has been graduaally recovering by means of your medicine. I would like to briefly mention about this..
His eyes are looking more meaningful. His dull looking has disappeared.. He started eye tracking, understanding what we say, and started to hit/touch us for the things he liked and disliked. His hands and feets are good looking, do not seem diseased. The tramble in his legs diminished.
I had sent the recent video, EGE and MR reports to you through Ms.. Nilgün. Now, I have been waiting for medicine for level 4.
As SSPE families, we have established a non-governmental organization to search for SSPE disease. We have contacted SSPE families from different countries of the world via this organisation and our website. We have been trying to help them in all aspects.
Please kind notice that, we are deeply grateful for your priceless help of which in return you asked us nothing. We thank you very much.
With our very best regards
Sibel TANYILDIZI ( Mother of Ufuk TANYILDIZI )
Case 3 (Opinion of German neurologist Dr. Garner):
27 year old male with SSPE
The data presented here are taken from the medical records I was able to see at Dr. Oswal's Clinic.
The young man was referred to Dr. Oswal on 18th of December 2001. He was healthy until 2 years before, then first developping headache and some psychiatric abnormalities. One year before referring him to Dr. Oswal he developped involuntary jerky movements neck hands and legs. The EEG at that time showed epileptiform activity and slow background activity.
At admission he was unable to stand or walk independently. Involuntary movements were present, speech was unclear, not understanable and he was dependent for all of his daily activities. Walking only was possible with two hand support. Hand mouth co-ordination was dysmetric. Moderate spasticity was present in all limbs. Intellectual ability was reduced. Physiotherapy was not done, however some antiepileptic drugs were given.
After starting g-therapy in december 2001, two month later no changes could be observed. However one year later the records show significant improvement in walking with no help required. Jumping also possible. He is reading newspaper now, is independent in daily activities and talking improved. Still he gets exited easily. Jerks were still present, however reduced.
The follow up on 28th of July 2004 shows further improvement. No jerks now present. Is able to perform easy jobs like bringing groceries from shop etc. Walking is normal, can ride bicycle now. He is independent in all daily activities.
Last checkup on 21.6.2006: Still some forgetfulness, otherwise positive changes preserved. Occasionally headache and vomiting. Still no job, but able to live nicely with his family, not requiring any help.
Medical history: The diagnosis of SSPE (Subacute sclerosing panencephalitis) was given by a neurologist from Mediciti Hospital in June 2001 according to typical clinical findings, EEG and laboratory findings. The EEG at this time showed multifocal epileptiform activity. Clinically he was frowsy, restless, showing sudden jerky movements, not comprehending commands and not cooperativ for examination. Measles antibodies (IgG) in CSF were positive.
The diagnosis was confirmed by a neurologist (Dr. Ichaporia) in Pune on 18th of December 2001when g-therapy was started.
EEG followup (Dr. Ichaporia) from 17.12.2002 showed improvement with returning background activity to normal and marked reduced periodic complexes in the frontal runs.
EEG done on 11.6.2003, on 27.;7.2004 and 21.6.2006 all were within normal limits.
So as a summary I conclude that this is a very rare case of a patient recovering from SSPE to almost normal state for last three years under Dr. Oswals g-therapy.
Case summary done by
Dr. Christoph Garner
Neurologist
KWA Klink Stift Rottal
Bad Griesbach Germany
Phone 0049-8532-87461
e-mail: garner-christoph@ kwa.de
